Babies with Down Syndrome: A New Parents’ Guide

(2009 IPPY Award Winner: Silver Medalist, Parenting/Family category)Babies with Down Syndrome, the trustworthy guide which has benefited thousands of families since it was first published in 1985, is completely revised and updated in a new, third edition. Covering the best practices for raising and caring for children with Down syndrome through age five, this book is invaluable to new parents who have welcomed a baby with Down syndrome into their lives. This new edition incorporates the latest scientific, medical, educational research, and practical information available, as well as parents suggestions and feedback. Existing chapters have been revised, some completely rewritten by new authors, and in keeping with its parent-friendly reputation, most of the book’s contributors are parents of children with Down syndrome. Chapters cover: What Is Down Syndrome?: A primer on the causes, characteristics, and diagnosis, including the latest information on genetics and prenatal testing; Adjusting to Your Baby: Advice from an experienced mother on coping with common emotions and announcing the news to friends and family; Medical Concerns & Treatments: An overview of possible health issues including celiac disease, sleep apnea, diabetes, reflux, and skin problems, with an emphasis on detecting signs early for needed treatment; Daily Care: The gamut of care from feeding to bathing, with expanded information about toilet training; Family Life: The impact on siblings and couples, discipline issues, and new material to help everyone understand that a child s behavior is a form of communication; Development & Learning: Expectations about development plus new material on variability in development, learning styles, using reading to develop language, memory strengths and weaknesses, and using play to encourage learning; Early Intervention: An overview of services and therapies for babies & toddlers with new information on the transdisciplinary approach, providing services in the natural environment, transitioning to preschool, and common

• ISBN13: 9781890627553
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Early Communication Skills for Children With Down Syndrome: A Guide for Parents and Professionals

For children with Down syndrome, communicating is just as urgent and essential as it is for anyone else. In the newly updated and expanded edition of Communication Skills in Children with Down Syndrome, Libby Kumin offers comprehensive, authoritative, and practical advice based on her nearly 25 years of firsthand experience with kids with Down syndrome. She explains the role of a SLP, the stages of communication development, and how certain characteristics of Down syndrome, such as low muscle tone, hearing loss, and cognitive delays, can slow progression of those skills. Delays can lead to frustration and other problems for children who do not have intelligible speech until age 2 or later. EARLY COMMUNICATION SKILLS FOR CHILDREN WITH DOWN SYNDROME focuses on speech and language development from birth through the stage of making 3-word phrases, which is often around kindergarten age, but can occur later. This book offers a wealth of information on intelligibility issues, hearing loss, apraxia (difficulty planning oral-motor movements), and other factors that affect communication for children with Down syndrome. It explains how to prepare for and understand the results of speech-language assessment, and goes on to describe what to expect in the years ahead when a child enters elementary school. Throughout the new edition, the author incorporates the latest research on Down syndrome and communication development. She has added new chapters on high- and low-tech augmentative and alternative communication options, as well as articulation and literacy (how reading aids in the learning of language, speech, and auditory skills). New checklists on evaluating and treating speech problems, and numerous home activities designed to help children master each stage of communication development have also been added.

• ISBN13: 9781890627270
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Early Communication Skills for Children With Down Syndrome: A Guide for Parents and Professionals Reviews

Review by Midwest Book Review:

Written for both parents and professional caretakers, Early Communication Skills For Children With Down Syndrome by Libby Kumin (who has 23 years of experience in working with children with Down syndrome) is very highly recommended as an informational resource by parents, caretakers, teachers, and anyone else charged with the responsibility of dealing with Down Syndrome children. With a focus on speech and language development, through the stage of making 3-word phrases, Early Communication Skills For Children With Down syndrome offers in-depth insight, home communication activities, ways to help one’s child learn basic rules of conduct, and much more. An excellent instructional resource, Early Communication Skills For Children With Down Syndrome is a welcome and necessary addition to institutional speech pathology and Special Education resource and reference collections.

Review by J. Pariseau:

I wish I had time to read the whole thing at once, it’s full of helpful info. I recommend it to anyone working with or parenting a child with down syndrome. Something that is partcularly nice about it as well as the other books like it is that they don’t talk in ages but in stages. This way you can follow your child, and not some outward source that determines what they should be doing and when.

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Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives

(2008 National Parenting Publications Awards (NAPPA): Gold Award; 2008 Mom’s Choice Awards: Silver Recipient, Special & Exceptional Needs; 2008 Nautilus Award: Silver Winner, Memoir/Personal Growth) Having a baby with Down syndrome is not something most parents would willingly choose. Yet many who travel this path discover rich, unexpected rewards along the way. In this candid and poignant collection of personal stories, sixty-three mothers describe the gifts of respect, strength, delight, perspective, and love, which their child with Down syndrome has brought into their lives. The contributors to this collection have diverse personalities and perspectives, and draw from a wide spectrum of ethnicity, world views, and religious beliefs. Some are parenting within a traditional family structure; some are not. Some never considered terminating their pregnancy; some struggled with the decision. Some were calm at the time of diagnosis; some were traumatized. Some write about their pregnancy and the months after giving birth; some reflect on years of experience with their child. Their diverse experiences point to a common truth: The life of a child with Down syndrome is something to celebrate. These women have something to say–not just to other mothers but to all of us.

• ISBN13: 9781890627850
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Rating: (out of 31 reviews)

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Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives Reviews

Review by Richard L. Schreiner:

I am the father of an 18 year old daughter with DS and am physician in chief of Riley Hospital for Children in Indianapolis. GIFTS is one of the most inspiring books I have read. And I am not noted for being a warm, fuzzing, sensitive guy; in fact, recently my wife said that I scored quite low on the “sensitivity scale.” I have given copies of GIFTS to about 50 new parents of babies with DS at our IDSF (Indiana Down Syndrome) and DADS (Dads Appreciating Down Syndrome) functions and when babies with DS have been admitted to Riley Hospital, usually for open heart surgery. The response from these parents has been one of the most amazing things I have observed. One mother told me that this book is exactly what she needed when she was having such emotional difficulties shortly after the birth of their new baby. I bought another 100 copies of GIFTS and will give a copy to any parent of a baby with DS or who is pregnant with a baby with DS. Rich Schreiner, Indianapolis IN

Rich Schreiner | 06.14.07 – 9:45 am |

Review by Tammy:

As a parent of a child with Down Syndrome, it’s very hard to find “inspirational” stories. All the physicians have negative viewing materials.

This book allowed me to know, I’m not alone, it’s not all bad and what a wonderful experience we all can experience if we’d shut our mouths and open our minds.

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My Friend Has Down Syndrome (Let’s Talk About It)

The sensitively written LetÂ’s Talk About It Books encourage preschool-age and early-grades children to explore their feelings, deal with problems that trouble them, and understand others who have problems of their own. Each title speaks to a particular concern that children might encounter in the course of growing up. All books in this series have appealing color illustrations on every page, and are available in both English and Spanish language editions. A short section at the back of each book offers related advice to parents. My Friend Has Down Syndrome describes a condition that affects many families. Younger children are normally puzzled when they encounter other kids who suffer from Down Syndrome. Here is a heartwarming and reassuring story of how an ordinary child comes to understand and befriend another child who has Down Syndrome.

• ISBN13: 9780764140761
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Hi, I’m Ben… And I’ve Got a Secret!

Back by popular demand and with an updated look, this simple children’s book tells the story of Ben, a young boy who has a secret. Before revealing his secret, Ben shares much about his life and likes. All readers find they have much in common with this charming boy with Down syndrome. A must have for siblings, school classrooms, church and synagogue reading rooms and public libraries. THis new edition includes mischievous bear illustrations by David Tesnar.

Rating: (out of 4 reviews)

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Gross Motor Skills in Children With Down Syndrome: A Guide for Parents and Professionals (Topics in Down Syndrome)

Children with Down syndrome master basic gross motor skills-everything from rolling over to running-just as their peers do, but may need additional help. This guide illustrates more than 100 activities for parents and professionals to practice with children from birth through age six. Checklists allow readers to plan and track a child’s progress.

• ISBN13: 9780933149816
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Fine Motor Skills for Children With Down Syndrome: A Guide for Parents And Professionals (Topics in Down Syndrome)

The popular book, Fine Motor Skills for Children with Down Syndrome is now available in an expanded new edition. Written by an occupational therapist who has worked extensively with children with Down syndrome, and is also the mother a teenager with Down syndrome, this book explains the best practices and procedures for helping children master daily living skills for home, school, and an independent future. The author presents a thorough overview of the building blocks of fine motor development and how the characteristics of Down syndrome can impact the acquisition and progression of fine motor skills. She also explains the building blocks of fine motor development: Stability
Bilateral coordination
Sensation
Dexterity
Early arm and hand control
And covers important daily living skills for home and school: Dressing & grooming
Eating & drinking
Cutting
Grasping a pencil
Preprinting skills
Drawing
Printing
Cursive handwriting
There are instructions for dozens of easy home- and school-based activities, which help children gradually overcome delays and learn the fine motor skills mentioned above. The author suggests ways for parents to incorporate these exercises into as many day-to-day activities as possible, recognizing how impractical it is to constantly be in “therapy” mode with a child. New material includes a chapter on problems with sensory processing for those who are over- or under-responsive to touch, or have unexpected reactions to sound, pain, or other sensations. Being aware of these sensitivities can open pathways to better behavior and responsiveness to therapy. Also new is information about a critical developmental step–determining when a child is ready for preprinting activities.

• ISBN13: 9781890627676
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Fine Motor Skills for Children With Down Syndrome: A Guide for Parents And Professionals (Topics in Down Syndrome) Reviews

Review by Christine V. Smith:

Maryanne Bruni has taken the best of both worlds of knowledge-therapist and parent of Down syndrome child–and combined them when she wrote this terrific guide. Listing developmental sequences step by step for scissors and handwriting skills helps me explain to parents what to work on at home and what to expect next. This guide should be in every pediatric facility and early childhood program’s library. It covers all the practical hands-on treatment ideas that get glossed over in OT school. Thanks, Maryanne.

Review by :

This is an excellent resource for parents of young children with Down syndrome. The author is encouraging and helpful, offering several activities for reaching each goal. Her explanation of the components of fine motor coordination are very helpful in allowing a more complete understanding of the reason why your child is doing each activity he/she does. I consult with this book regularly and it has given our OT some ideas as well!

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Fasten Your Seatbeat: A Crash Course on Down Syndrome for Brothers and Sisters

Even the closest brothers and sisters don’t always get along or understand each other. Add a disability like Down syndrome to the mix, and that sibling relationship gets even more complicated, especially for teenagers. This is the first book written exclusively for teens with a brother or sister with Down syndrome. In an easy-to-read, question & answer format, it tackles a broad range of their most common issues and concerns. Nearly 100 questions – all posed by teen siblings – are grouped into the following categories: facts and statistics about Down syndrome; how people with Down syndrome learn; handling parent and family conflicts; dealing with your sibling’s frustrating behaviours; managing uncomfortable situations; sorting out your feelings; becoming an advocate; what the future holds for you and your sibling; and, finding local and national resources. Thoughtful, knowledgeable answers are provided by Brian Skotko, the brother of a young woman with Down syndrome, and Sue Levine, a social worker focused on sibling issues for the past 30 years. This book gives teens the green light to explore their own feelings and questions about their sibling with Down syndrome and how their relationship may change in the future.

• ISBN13: 9781890627867
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Rating: (out of 3 reviews)

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Teaching Reading to Children With Down Syndrome: A Guide for Parents and Teachers (Topics in Down Syndrome)

Teach your child to read using the author’s nationally recognized, proven method. From introducing the alphabet to writing and spelling, the lessons are easy to follow. The many pictures and flash cards included appeal to visual learners and are easy to photocopy! Now includes refreshed Resources and a CD-ROM of Appendices. Print out these visual supports–picture and word cards, lotto games, charts, and more–as often as you want!

• ISBN13: 9780933149557
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Rating: (out of 14 reviews)

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Gifts 2: How People with Down Syndrome Enrich the World

Award-Winning Finalist in the Anthologies/Non-Fiction category of the National Best Books 2009 Awards, sponsored by USA Book News Acceptance, courage, friendship, awareness, and joy–these are the gifts recounted in more than seventy inspirational essays included in Gifts 2. Edited by Kathryn Lynard Soper, the follow-up to the bestselling first volume, Gifts 2 presents a broader perspective on Down syndrome and life by including passionate stories by siblings, grandparents, cousins, aunts and uncles, as well as mothers of older children. Friends, teachers, medical professionals, and coaches also share the joys of knowing and caring for someone with Down syndrome. Like the previous book, Gifts 2 helps us see that the hopes and dreams family and friends have for a child with Down syndrome are similar to the ones we have for any child. And, more often than not, expectations are fulfilled–if not always the way we anticipated they would be. A grandparent, inspired by his grandson’s strong will, discovers the ability to persevere and not give up on a job. A brother who assumed he would be the person helping his sibling with Down syndrome describes how often it is the other way around. A young teacher remembers her first student with Down syndrome and it gives her strength and clarity when she is faced with her own child’s diagnosis. This heartfelt collection is a source of comfort to other families, and offers insight to anyone who wonders how people with Down syndrome live today. Give the ultimate gift, share both volumes with family and friends, your child’s teacher or pediatrician–help raise public awareness and provide others a point-of-view they might otherwise miss.

• ISBN13: 9781890627966
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• Notes: Brand New from Publisher. No Remainder Mark.

Rating: (out of 6 reviews)

List Price: $ 19.95
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