Question by Jewels: I have a question on Spina Bifida?
I am a 24 year old that has Spina Bifida, so yes i know what it is obviously so please do not give me the definition. My question is, when i get the question “why are you in a wheelchair?” and i say “i was born with Spina Bifida” “what is that?” my usual response is something like “i was basically born with a hole in my back/spine” i know thats not completely accurate but i am trying to say it in lammons terms and as short and sweet and to the point as possible. What is a better way to answer that question more accuritly without going into a 20 minute lecture on it?
Best answer:
Answer by Hokie For Life
I tell people the same basic thing when they ask about my son. People have alot of questions that I don’t really have a definite answer to. They ask if he’ll ever walk, we’re working on that, but he won’t be able to walk long distances. He’ll use a wheelchair out in public to get around.
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I usually tell people my back did not close properly when my mom was pregnant with me and that I have the most severe form of spina bifida (myelomeningocele).
when ppl ask me this about my daughter i just explain to them that she had a hole in her back and it caused her to lose feeling from her waist down. Most ppl are ok with that…some may ask other questions…but i would much rather have ppl ask questions than stare at her…which we have encountered that more!!!
I would skip the “I have Spina Bifida” and just say” I was basically born with a hole in my spine.” (Although isnt it when part of your spine forms outside of your body?) I think that would make the conversation shorter.